Through the @chronicloveclub I was able to discover the awesomeness that is @youlookokaytome, who is making her illness a platform to showcase her talents.

Jameisha’s Story:

Hey, I’m Jameisha. I’m a 22-year-old filmmaker from London with Lupus, FAI (Femoroacetabular Impingement) and Ophthalmoplegic Migraines.

At 18 I started eating better and exercising every day. I loved my stronger physique and the sharp increase in energy. It was at this time that Lupus decided to hit me like a tonne of bricks. All of a sudden, I was sleeping all the time (sometimes 16 hours a day!) Practically anything would cause muscle aches and I would also get unexplained pain in my joints.

I can’t tell you how many times I went to the doctor with no answers. Even after being referred to a rheumatologist, I felt like no one believed my pain was real. It’s already difficult to go through intense pain every day. It’s even more difficult when you don’t have the answers. Luckily I was able to get help from a world-renowned Lupus professor in London who I owe a lot to.

Where am I now? I’m still trying to figure this Lupus thing out. As positive as I like to be, I can’t pretend like this isn’t difficult. It can be extremely lonely and overwhelming but it’s been a lot easier since being more open about my pain on Instagram. There is a great community on here!

Interestingly enough, the pain has inspired me to create a platform for chronic illnesses where I can use my skills in filmmaking to make content that can create a sense of community for us spoonies but also educate wider society. I hope it makes a difference. I’ll do my best to make that happen.