Today is World Lupus Day! It’s funny how much can happen in a month, let alone a year. A year ago today exactly, I decided to launch what would be the first out of two failed attempts to share my three-year journey, struggle, life with lupus; and what a journey it has been. It has taken me places and made me do things I never thought I was capable or even willing to do, all in the name of survival, desperation and finally submission. I said it last year, and I will say it again this year, I don’t believe in any way that Lupus is my ultimate destiny, but now looking back on my experiences since being diagnosed it has changed my perspective of what it means to live, to have joy, to have peace. In no way does having Lupus have to be a death sentence, and now with the increased research and progress that has been made in the treatment for lupus and other auto-immune diseases the diagnosis is not quite as dismal as it was 10 or even 5 years ago. However, this year lupus showed me that it can be a fatal disease that should not be taken lightly and that when one is given the chance at life, she should live it to it’s full Divinely determined destiny. In a way I needed to almost die in order to learn how to live, it was a renewing of every part of me physically, mentally, emotionally and most importantly spiritually. I am still being renewed… Revelation 21:5
So with this renewal comes a complete renewal, revision of the website/story/book I have been trying to write, The Lupus Diaries. It deserves it’s own platform and will be launched at the end of May, which is Lupus Awareness month in NYC. Please pray for me as I take on a task that I have avoided because of procrastination and fear. The few posts that I have created have been read by people all over the world, and have really inspired and encouraged people that I didn’t even think knew about it. I truly hope that it is a blessing for everyone who reads it.
Lupus affects over 1.5 million people in the United States and over 5 million people worldwide. Every year thousands of people are newly diagnosed with Lupus and so many more are incorrectly diagnosed. It is a disease that mostly affects women; about 90% of the people affected by Lupus are women. So with today being World Lupus Day, I ask you all to take this time to reflect on what you could do to help the cause. Because the progress of research in Lupus could mean advancements in other auto-immune diseases such as, Multiple Sclerosis, Rheumatoid Arthritis, Lou Gehrig’s disease, Cystic Fibrosis, and Cancer just to name a few. I know that there are so many other causes out there but there is a high likelihood that you know someone who has been affected by this disease, like me. Whatever you could do to help no matter how big or small would make a considerable difference.
I am also going to take this opportunity to promote an opportunity where you can contribute to Lupus non-profit organization and have a great time. I am on the S.L.E Lupus Foundation Young Leadership Board and we are hosting the 9th Annual NIGHT FOR THE FIGHT party at Hudson Terrace on June 4th. We would love to have you all there for the open bar, free food, raffle prizes, silent auction, live auction, free swag bags, photo booth, live performances, music, dancing and just a lot of fun.
Regardless of what you do I invite you to learn more about Lupus and make the decision for yourself, to be an advocate. Also, don’t forget to look out for the launch of The Lupus Diaries; if you want to read the older posts they are available at cynosuji.tumblr.com.
“Be kinder than necessary, for everyone you meet is fighting some kind of battle.”