The lupus rash that developed all over my body was one of the key factors that helped doctors establish my diagnosis of lupus in a somewhat timely manner. The frustration came, because for me the rashes that developed on my body varied in shape, size, irritation, and none were shaped like a butterfly. The large, shapeless magenta colored ones that first appeared on my eyelids and cheeks looked completely different from the ones on my hands, and didn’t itch as much. In addition to dry, cracked and peeling skin on my hands, I developed tiny bright red dots that felt like and sort of looked like bug bites. The deep purple, large, and raised rashes that developed all over my arms and body left horrible hyper pigmentation when the rash would finally subside. These rashes felt less like bug bites, but they had a deeper, more painful burn. I did use the topical steroids prescribed by the dermatologist but I also used a lot of natural remedies that really helped ease the pain, and really helped me heal from the deep scarring a lot faster than I expected.
Here are some tips that really helped me during this time:
- I stopped using all harsh soaps and detergents
- I stopped using lotions that contained mineral oil, as this moisture only sits on top of your skin and clogs your pores
- I began to bathe with 100% Natural African Black Soap: it is soft with an organic shape. It has a delicate texture and a natural, earthy smell. It is not oily, and can be used for hands, face, body and hair. It is most commonly found in Ghana, however other countries have their versions of black soap as well. *Be weary of imitations. Read more about the benefits of black soap here. You can also use Dove soap, which may be a bit more accessible.
- I started to moisturize with pure raw shea butter. It is lightweight, easily absorbed by the skin, and helped a lot with extreme dryness. In hotter months I use moisturizing oil right out of the shower. Besides shea butter you can also use a lotion without mineral oil.
- I would use a 1:4 concoction of apple-cider vinegar and warm water, spray it all over the rashes on my body, let it sit and dry completely for 5 min, then bathe. This also worked great with the sores that I developed on my scalp.
- For my hair I would saturate my hair with it, use a plastic wrap and sit for 10-15 minutes then rinse with water, then shampoo.
- I also used sunscreen anytime I was out in the sun at least an SPF 50.