One of the symptoms of lupus is fatigue, which is a common complaint among people suffering from Lupus.  I try to explain to my friends and family that this is not a regular kind of tired when I am not in the middle of a flare, this is literally feeling like my insides and outsides are melting away and there is nothing I can do about it.  Naps are inevitable and the feeling of apathy towards everything takes over, it is very hard to be productive when lupus fatigue takes over.  There was no amount of caffeine or energy drinks that could give me the sustained amount of energy that I needed to get through the day and night.  I would feel so guilty about having to cancel plans with friends, or leaving an event early because I was so tired and had to go home to sleep.  My fatigue even stopped me from working on this website, between working, commuting, and having a social life, I would be completely wiped out by the time I got home to work on the website.   Luckily now I don’t have as many distractions, but the extreme fatigue is still an issue, for me this is caused by severe anemia related to lupus.  I wrote a post about the different causes of anemia specifically found in lupus patients and the importance of seeing a hematologist when your anemia cannot be controlled.    There may be other factors that could be causing your fatigue, like your medication, related complications or diseases related to lupus, weight gain, depression, etc.  The best advice I did get was to listen to my body and rest when it is telling me to rest.  I know this can be very hard to do when you factor in jobs, kids, and other responsibilities, but just remember you are no good to any of those people if you are not well.  I started by making a goal sheet, some days there were ten things, others days there were only two, but at least it helped me to start to prioritize the most important things in my life and for the day.  It is very important to put things into perspective when you are talking about your well-being and your health.  Here is a great Q and A from the Lupus Foundation of America that may answer any other questions you may have about what is causing your fatigue and what you can do if anything to combat it.    Fell free to add your comments below.

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